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Michigan Boy Is Gravely Ill. Wondering About Simpson Oil

washtenaut

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washtenaut Advanced Member

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I read that he lives in Clarkston, MI with his mother, Kimberly Morris Karp. I read a story by Matt Mowery that talks about the treatments he has been through but no mention of cannabis. I sent Mowery an email asking if he knows how to contact the family with some info on simpson oil.

 

Can anyone figure out how to reach his family with the suggestion that they research cannabis and simpson oil? He is now in hospice and time is running out for him.

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washtenaut Advanced Member

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This is so frustrating. Isn't this an opportunity, a great opportunity to help save a human life? It's also a great opportunity to try to have cannabis make an enormous positive impact and to further the cause of medical cannabis. It could result in a boy living out his life rather than perishing. Wonderful!! It would mean lots of press coverage and could open some eyes as to the potential of cannabis as medicine too.

 

I have not been able to find out how to contact this family just to ask them to please look into the possibility of Simpson Oil. Too bad we don't have a Cannabis OutReach program.

 

Also, I sent the following to our friends in Lansing...and copied the press contacts that I have.

 

 

Mr. Schuette and Michigan Legislators,

 

For the second time in the last few weeks I learned of someone that has given up their cancer treatments and opted to die. The radiation, chemo, surgical procedures all can be so horrible that people just want the pain to stop, even knowing the consequences.

 

Today I called an acquaintance to ask if he might know how to reach out to the family of a dying boy with information on the cannabis extract, Simpson Oil. This oil is a highly concentrated form of cannabis that has shown some promise in treating several types of cancer, including effectiveness in shrinking tumors of the brain. It also helps very sick people to be able to eat and drink and to sleep even with horrible pain. I feel strongly that Simpson Oil is a reasonable option for a cancer victim, especially when medical science has run out of options and offers only hospice care.

 

I was shocked when this acquaintance, who has helped to treat a number of patients in the past, told me that he could not help this dying boy. He is afraid of arrest if he reaches out to this family. I cannot believe that this community is now too fearful to even help a dying boy! How did we come to this point?

 

The clear intent of the voters in approving medical cannabis was to be able to help people in this situation? Without assistance from other patients and caregivers, many ultra-qualified patients will be unable to benefit from this medicine. This boy should certainly be allowed a last ditch shot at life, shouldn't he? Those capable of helping are now paralyzed by fear however because of constant attacks on the medical cannabis community.

 

You all claim to want to help the qualifying patient, the terminal case, but what have you done to help? How about offering up an amendment that would help legally protect any person that would offer cannabis aid to the terminal patient? These patients are out of time and cannot wait. Today anyone offering help to a qualified but unregistered person is risking a long prison sentence for his compassion.

 

Mr. Schuette, I understand that your legal opinions concerning the MMMAct of 2008 take immediate effect. Is there any way you could offer an opinion that would protect those assisting these unfortunate souls facing their own death? These compassionate people are not criminals and are not looking to profit. They just wish to assist the sick and dying patients of Michigan.

 

Please act as quickly as possible on this as lives are literally at stake. Thank you for your attention.

 

Regards,

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abe supercro Advanced Member

abe supercro

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I read that he lives in Clarkston, MI ................

Can anyone figure out how to reach his family with the suggestion that they research cannabis and simpson oil? He is now in hospice and time is running out for him.

 

I understand this empathy and obvious urgency, whether parents/drs are open is another... But Why Not... An Address and often Telephone number are public info at county records, if they are a homeowner... usually a property title search company can look it up for ya on the tele... given the

situation. (if you have the last name.. . check w the public school system, wait what age...?

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peanutbutter Advanced Member

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This is so frustrating. Isn't this an opportunity, a great opportunity to help save a human life? It's also a great opportunity to try to have cannabis make an enormous positive impact and to further the cause of medical cannabis. It could result in a boy living out his life rather than perishing. Wonderful!! It would mean lots of press coverage and could open some eyes as to the potential of cannabis as medicine too.

 

It's a great way to get arrested.

 

When you try to talk to family like that, they think you are some sort of monster.

 

And the assumption is that if there were anything to it, the doctors would already know. So you must be delusional at best.

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knucklehead bob Advanced Member

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It's a great way to get arrested.

 

When you try to talk to family like that, they think you are some sort of monster.

 

And the assumption is that if there were anything to it, the doctors would already know. So you must be delusional at best.

There are those people that think "my government knows what's best for me". :blink:
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washtenaut Advanced Member

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Well, I understand that the family is wary. They realize that families in this situation are very vulnerable and all sorts of vultures will offer false hope...in exchange for money.

 

Until our state or federal government decides to issue actual educational material, what other course do we have but to try to educate ourselves?

 

Why is it an arrestable offense to tell the family to research cannabis oils? I don't fully understand that. I've spoken and written to a few cancer patients and just asked their family member to research for themselves things like simpson oil, phoenixtears, michiganmedicalmarijuana.org, etc.

 

This boy's situation has been very well documented by CNN and medical science has run out of options for the kid. If cannabis could help this boy, it would be terrific on so many levels.

 

I still have been unable to reach the family and am still searching for ideas. Matt Mowery, who wrote an article on Ryan, does not seem to have a channel to the family either.

 

Help!

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Frank R Advanced Member

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It is indeed unfortunate that so many in the MMJ community fear dire legal consequences for even suggesting Simpson Oil as a last ditch treatment for Ryan Kennedy.

But fear they must, and that fear kills the hope of a miracle for the boy.

 

The Internet works in mysterious ways, and perhaps just raising the topic of Ryan Kennedy using Simpson Oil to cure his brain cancer may get the idea to someone close to him as that person Googles cures for brain cancer.

 

Collaborative Ependymoma Research Network http://www.cern-foundation.org/

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JenInCapac Advanced Member

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Try searching for any of the people's names you know on facebook. Almost everyone is on facebook and there is a good chance that some of these people are. I searched for the Kimberly person in your second post and got a person with the same full name. Probably the mother.

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washtenaut Advanced Member

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PB, you are saying that you can get in trouble for approaching someone about Simpson Oil and then providing it, correct?

 

If I approach someone and tell them to research cannabis and Simpson Oil, I am not breaking any laws. I have no Simpson Oil to provide to the patient.

 

If the patient or his family does research and is interested, they can get a doctor's recommendation and they can then approach a possible provider about acquisition.

 

Is that how it needs to work today or is that still breaking the law somehow. If so, please explain.

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peanutbutter Advanced Member

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PB, you are saying that you can get in trouble for approaching someone about Simpson Oil and then providing it, correct?

 

If I approach someone and tell them to research cannabis and Simpson Oil, I am not breaking any laws. I have no Simpson Oil to provide to the patient.

 

If the patient or his family does research and is interested, they can get a doctor's recommendation and they can then approach a possible provider about acquisition.

 

Is that how it needs to work today or is that still breaking the law somehow. If so, please explain.

 

That is more removed .. it seems safer. I have no idea though.

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washtenaut Advanced Member

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I saw that this boy has died. RIP.

 

I never met the kid but his passing saddens me. I haven't the faintest idea if Simpson Oil could have helped him but in a way I feel like I failed him. I failed to reach him. Our community failed to give him that slim chance.

 

I mentioned before that some sort of cannabis outreach program is needed. Legally, this program would need to be careful to only recommend that the victim or the family do some research on cannabis extracts. The program could not provide simpson oil.

 

Anyone have any thoughts on an Outreach program that would contact seriously ill people with cannabis treatment information, articles, maybe even success story volunteers ?

 

------------------------------------------------

 

http://www.theoaklandpress.com/articles/2012/05/27/news/local_news/doc4fc1a45fd6d35058585846.txt?viewmode=fullstory

 

 

 

Clarkston's Ryan Kennedy passes away two days after his 10th birthday

 

Published: Sunday, May 27, 2012

By MATTHEW B. MOWERY

matt.mowery@oakpress.com; Twitter: @matthewbmowery

 

Ryan Kennedy, the Clarkston youngster who brought worldwide attention to juvenile brain cancer, made it to his 10th birthday on Thursday — despite all the odds stacked against him — but passed away two days later.

 

His uncle, Kevin Morris, tweeted at 1:17 p.m. Saturday: “we just lost a strong fighter. He got to see his bday. Resting now in the arms of God.”

 

First diagnosed with relatively rare ependymoma in 2007, Kennedy underwent seven surgeries, four rounds of chemotherapy and two rounds of chemotherapy before making his own decision in late February to suspend further treatment. [Click here to read his full story.]

 

Thanks to the efforts of kids from Clarkston Area Schools and his adopted teammates from the Oakland University baseball team, his name — in the form of the hashtags #RyanKenndy or #staystrongRyanKennedy — became a trending topic on the social media website Twitter.

 

His story, which had already united the Clarkston community and beyond, became world-wide news, as well, picked up by outlets such as CNN, ABC News, the United Kingdom’s Daily Mail, Yahoo! and the New York Daily News, and was translated into at least a half-dozen different languages as it made its way around the world.

 

“It’s amazing. It’s something that doesn’t take a whole lot of time, but it’s a huge gesture that means a whole lot to all of us. ... It’s good to see because — people don’t take the time to do the right thing, you don’t think very often. To see that there are actually good people out there that care, that means a lot,” said Morris, who joined the Twitter campaign wholeheartedly, hoping to give some meaning to what the entire family’s been going through.

 

“We’re taking it in stride. It’s a terrible, tragic situation, but the one thing: If we can, somehow, by this attention, with everything that’s going on with Twitter, help another family not have to go through what we’re going through right now, then — I’m not going to say it’s worth it — but it will help us to rest easy.”

 

The family was hoping the ordeal they were going through could help raise awareness — and hopefully fuel donations — for researching a cure for the more than 120 types of brain cancer

 

“As much as this situation sucks, I would hope that some good would come out of it. I’ve always said, as soon as Ryan was diagnosed, that I wanted to do something, and make this more not just about Ryan, but getting brain cancer, and make (people aware) and make it big, like leukemia, breast cancer,” said Ryan’s mother, Kimberly Morris-Karp, who worked with CureSearch.org to ensure that any donations with mention of Ryan’s name, Twitter or brain cancer funds will go directly toward research.

 

To contribute directly to research for Ryan Kennedy’s specific type of cancer, visit the Collaborative Ependymoma Research Network at www.cern-foundation.org.

Email Matthew B. Mowery at matt.mowery@oakpress.com and follow him on Twitter @matthewbmowery.

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