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Mother’s book details challenges of her son’s rare disease

 

http://www.morningstarpublishing.com/articles/2012/06/26/grand_traverse_insider/life/doc4fdf8701b0beb187651151.txt?viewmode=fullstory

 

“He was the first minor in the state of Michigan to be licensed, but even though (the treatment) was extremely effective for _____ it was not a treatment that we wanted to continue – we were worried about psychological dependency, physical dependency and our child – and his developing brain. But yet it was the one source of reliable pain relief at the time. We had tried everything.”

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